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The Canadian Association of PNH Patients is thrilled to announce the launch of the Guide to Living Well with PNH! This important resource, developed by the Canadian Association of PNH Patients, is now available in digital and print formats. Our association would like to sincerely thank the members of the Canadian PNH community (including patients, families, physicians and nurses) for their many contributions to this one-of-a-kind »read more

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september-24

SAVE THE DATE! The Canadian Association of PNH Patients invites the Canadian community of patients and caregivers to join us at our upcoming meeting on Saturday, September 24, 2016 in Montreal. We are pleased to announce that »read more

You are invited to join the Aplastic Anemia and Myelodysplasia Association of Canada (AAMAC) at their upcoming Ontario Patient Support Group Meeting in Toronto, Ontario on Saturday, April 2, 2016. This free event will include »read more

The Patient Journey

Garrett Shakespeare

Garrett Shakespeare was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) 15 years ago. Now 26, this rare and deadly disease took its toll on his body and major organs for more than half of his young life. Once an avid »read more

Ask the Expert

Questions about PNH commonly asked by patients and caregivers will be answered by a leading PNH expert. Click here to see the list of questions. To submit your own question, fill out our form, or send an email to ask@pnhca.org