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The Canadian Association of PNH Patients is thrilled to announce the launch of the Guide to Living Well with PNH! This important resource, developed by the Canadian Association of PNH Patients, is now available in digital and print formats. Our association would like to sincerely thank the members of the Canadian PNH community (including patients, families, physicians and nurses) for their many contributions to this one-of-a-kind »read more

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You are invited to join the Aplastic Anemia and Myelodysplasia Association of Canada (AAMAC) at their upcoming Patient Education Day in Vancouver, British Columbia on Saturday, September 30, 2017. The purpose of this free »read more

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In the fall of 2016, the Patented Medicine Prices Review Board (PMPRB) requested input from stakeholders and interested members of the public on the PMPRB Guidelines, to ensure they remain a relevant and effective tool for »read more

The Patient Journey

Garrett Shakespeare

Garrett Shakespeare was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) 15 years ago. Now 26, this rare and deadly disease took its toll on his body and major organs for more than half of his young life. Once an avid »read more

Ask the Expert

Questions about PNH commonly asked by patients and caregivers will be answered by a leading PNH expert. Click here to see the list of questions. To submit your own question, fill out our form, or send an email to ask@pnhca.org