Print Friendly and PDF
Share this:  

The Canadian Association of PNH Patients (PNHCA) is thrilled to announce the creation of a new page on the PNHCA website called “What’s New in Research.” For the last 20 years, there has only been one Health Canada-approved treatment for PNH patients, but that may change in the coming years. There is a significant amount of activity underway to discover and develop new treatments for PNH, and right now, there are 10 »read more

Get Involved!

Sign up now to receive
the latest news and updates
from the Canadian Association
of PNH Patients

Tell Us

What’s Happening


This post is for all patients living in Ontario who might be affected by the new OHIP+: Children and Youth Pharmacare Program. Beginning January 1, 2018, all children and youth 24 years of age or younger in Ontario will be »read more


Rare Blood Disorders Supplement Barry Katsof, president of the Canadian Association of PNH Patients, recently contributed to a rare blood disorders supplement that ran in print in Maclean’s Magazine, as well as online at »read more

The Patient Journey

Garrett Shakespeare

Garrett Shakespeare was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) 15 years ago. Now 26, this rare and deadly disease took its toll on his body and major organs for more than half of his young life. Once an avid »read more

Ask the Expert

Questions about PNH commonly asked by patients and caregivers will be answered by a leading PNH expert. Click here to see the list of questions. To submit your own question, fill out our form, or send an email to