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The Canadian Association of PNH Patients is thrilled to announce the launch of the Guide to Living Well with PNH! This important resource, developed by the Canadian Association of PNH Patients, is now available in digital and print formats. Our association would like to sincerely thank the members of the Canadian PNH community (including patients, families, physicians and nurses) for their many contributions to this one-of-a-kind »read more

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What’s Happening

sept 24

INVITATION - Montreal Patient and Caregiver Meeting We are pleased to formally invite you to our next meeting for patients and caregivers who are located in Quebec and Atlantic Canada, on Saturday, September 24, 2016 in »read more

Oct 15

You are invited to join the Aplastic Anemia and Myelodysplasia Association of Canada (AAMAC) at their upcoming Patient Education Day in Moncton, New Brunswick on Saturday, October 15, 2016. The purpose of this free event is to »read more

The Patient Journey

Garrett Shakespeare

Garrett Shakespeare was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) 15 years ago. Now 26, this rare and deadly disease took its toll on his body and major organs for more than half of his young life. Once an avid »read more

Ask the Expert

Questions about PNH commonly asked by patients and caregivers will be answered by a leading PNH expert. Click here to see the list of questions. To submit your own question, fill out our form, or send an email to ask@pnhca.org