The Canadian Association of PNH Patients applauds governments across Canada for their landmark agreement to provide public access to Soliris, a life-saving treatment for the ultra-rare blood disease, PNH. With this agreement, Canada joins the vast majority of jurisdictions in the developed world that ensure access to Soliris for their citizens through »read more
PNH in the News
Click to read the latest print media coverage on PNH from Maclean’s, North Shore News, the Niagara Falls Review, the Vancouver Province, the Edmonton Journal and »read more
Click to see the latest broadcast media coverage on PNH from CTV Calgary, CKNW AM 980, CHSJ-FM Country 94.1, CTV Vancouver, TVRM, CBC Windsor and CBC Toronto. CTV/CKCO News »read more
Click to see the latest online media coverage on PNH from Maclean’s, the Mount Forest Confederate, the North Shore News, the Telegraph-Journal and the Edmonton »read more
What’s Happening
On Friday, July 22, premiers attending the Council of the Federation annual meeting in Vancouver reaffirmed their commitment to working together to improve patient access to life-saving drugs. As a result of this pan-Canadian »read more
On June 23 , Kelly et al’s study on the survival of PNH patients being treated with Soliris was published in the print edition of Blood. The publication of the study confirms that Soliris “dramatically alters the »read more
Patient Stories
Mark Brennan, a radio host from Saint John, New Brunswick, knew that having dark, cola-coloured urine wasn’t normal. It took his doctors months to discover the cause of this strange symptom. In 2004, Mark was diagnosed with »read more
