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The Canadian Association of PNH Patients (PNHCA) is thrilled to announce the creation of a new page on the PNHCA website called “What’s New in Research.” For the last 20 years, there has only been one Health Canada-approved treatment for PNH patients, but that may change in the coming years. There is a significant amount of activity underway to discover and develop new treatments for PNH, and right now, there are 10 »read more

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What’s Happening

Apellis Pharmaceuticals Inc., a biopharmaceutical company focused on the development of novel therapeutic compounds to treat diseases through the inhibition of the complement system, has initiated its PEGASUS Phase 3 clinical »read more

The Guide to Living Well with PNH has been updated to include information on the latest news in PNH research, navigating the complexities of accessing treatment through clinical trials, traveling with PNH, and more! Please »read more

The Patient Journey

Garrett Shakespeare was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) 15 years ago. Now 26, this rare and deadly disease took its toll on his body and major organs for more than half of his young life. Once an avid »read more

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