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Advocacy & Support

Across Canada, PNH community members joined together to raise public and government awareness of PNH, and of the issues facing patients. The Canadian Association of PNH Patients fought passionately for access to Soliris, and moved governments to provide this life-saving treatment through a pan-Canadian agreement in July 2011.

However, there are still Canadians living with PNH who find themselves without access to the drug.

If you or someone you know is still without access to Soliris through public or private coverage, or if you are having difficulty finding a PNH specialist, contact the Canadian Association of PNH patients at for support.