The Canadian Association of PNH Patients is currently involved in an advocacy campaign for access to Soliris through public funding by provincial and territorial governments. Advocates can be patients, caregivers, family members or friends – people who work in their community to improve the lives of those living with PNH. Across Canada, PNH community members are joining together to raise public and government awareness of the disease, and of the issues facing patients.

Your help can make a significant difference in achieving our goal of obtaining public funding for Soliris.

Your help is urgently needed. If you are interested in becoming an advocate, or if you would like more information, please contact us.

You can help by:

• signing our online petition
• collecting signatures to be presented in the Ontario Legislature (Ontario residents only) or in the Alberta Legislature (Alberta residents only)
• sending an email to your Premier and Health Minister
• requesting a meeting with your local member of provincial government
• reaching out to local media to share your story