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Be a Mentor, Request a Mentor

Learning that you have a rare and unfamiliar condition can be stressful, confusing and frightening. The Canadian Association of PNH Patients can help connect Canadians recently diagnosed with PNH with peers also living with the condition. Mentors can support new members of the PNH community with practical information and advice for not only coping with a rare disease, but thriving.

The Canadian Association of PNH Patients mentors:

– are Canadian PNH patients

– have been living with PNH for over two years

– are living well with the condition


Volunteer as a Mentor

If you would like to volunteer to offer peer support to Canadians recently diagnosed with PNH, please send an email to mentor@pnhca.org.

 

Request a Mentor

If you, a friend or a family member would like to be connected with a PNH mentor, please send an email to mentor@pnhca.org.

The Association will make every effort to ensure that mentors are assigned to newly-diagnosed individuals based on demographic and geographic proximity.

THE SUPPORT OF A MENTOR IS NOT INTENDED TO REPLACE THE ADVICE OF YOUR PHYSICIAN.  PLEASE SPEAK WITH YOUR DOCTOR IF YOU HAVE ANY QUESTIONS OR CONCERNS ABOUT YOUR HEALTH.