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Patient Stories »view all

Mark Brennan, a radio host from Saint John, New Brunswick, knew that having dark, cola-coloured urine wasn’t normal. It took his doctors months to discover the cause of this strange symptom. In 2004, Mark was diagnosed with »read more

Donna Caffell has been living with the ultra-rare blood disorder called PNH (paroxysmal nocturnal haemoglobinuria) for over nine years, and is one of 90 patients in Canada with the disease. A resident of Hamilton, Ontario, she »read more

PNH Forum »view all

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