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PNH in the News - 2012

As the issue of a catastrophic drug program heats up in New Brunswick, Mark Brennan, a PNH patient in Saint John, has been pushing hard for access to Soliris. Mark’s story has received some media attention in the province »read more

As a result of the Canadian Association of PNH Patients statement responding to Health Canada’s rare disease framework announcement, Association president Barry Katsof was quoted in a Canadian Press story on the subject. The »read more

In April, the National Post published a story which noted the efforts of the Canadian Association of PNH Patients and their fight for access to treatment. The media coverage featuring patients and their stories that the »read more