On Friday, July 22, premiers attending the Council of the Federation annual meeting in Vancouver reaffirmed their commitment to working together to improve patient access to life-saving drugs. As a result of this pan-Canadian »read more

On June 23 , Kelly et al’s study on the survival of PNH patients being treated with Soliris was published in the print edition of Blood. The publication of the study confirms that Soliris “dramatically alters the »read more

Following the recent recommendation made by INESSS (Institut national d’excellence en santé et services sociaux) to not include Soliris on Quebec’s public drug insurance plan drugs list, the Quebec Association of »read more

Advocacy efforts in Ontario are ramped up, and friends and family of PNH patients are armed with petitions to be presented in the Legislature. Advocates are working hard to collect petitions and spread awareness about PNH and »read more