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PNH Guide Now Available!

The Canadian Association of PNH Patients is thrilled to announce the launch of the Guide to Living Well with PNH! This important resource, developed by the Canadian Association of PNH Patients, is now available in digital and print formats. Our association would like to sincerely thank the members of the Canadian PNH community (including patients, families, physicians and nurses) for their many contributions to this one-of-a-kind publication!
To download a copy of the Guide, please click below:


To request a hard copy (or copies), please send an email to

The information contained in The Guide to Living Well with PNH  is intended for general knowledge only and is not to be substituted for medical advice. Please consult with your medical practitioner for further information regarding your personal circumstances.

This information has been prepared by the Canadian Association of PNH Patients, and is copyright protected.