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Join our members only section

The Members Only page is a private section of the Canadian Association of PNH Patients website. This page serves as an information hub for the Canadian PNH community, and will only be accessible to Canadian PNH patients and their caregivers.

If you are interested in accessing the Members Only page, please submit a request by emailing, and provide your answers to the following questions:

  1. Are you a PNH patient or caregiver?
  2. Where in Canada do you live?
  3. How long have you, or the person you care for, had PNH?
  4. Do you “Like” PNH Canada on Facebook?
  5. Have you attended our meetings in the past?
  6. Are you a member of our Canadian PNH Support Group on Facebook?

Once you have submitted your request, we will review your submission and, if approved, we will email you with a password that will give you access to the Members Only page. Please note that only PNH patients and caregivers will be accepted.

The Members Only page can be accessed through the Members Only tab on the grey navigation panel of this website, or by clicking this link:

If you are a Facebook user, please visit The Canadian PNH Support Group to engage in private dialogue with other Canadian PNH patients and caregivers. Approved members of the Facebook group will be provided access to the Members Only page.