For Media
Press Releases
July 27, 2011
Fight against PNH: Quebec among few remaining jurisdictions not listing Soliris on public drug insurance plan
Fight against PNH: Quebec among few remaining jurisdictions not listing Soliris on public drug insurance plan
July 23, 2011
Governments agree to fund life-saving treatment for rare, fatal blood disease
June 3, 2011
Quebec PNH Patient Association extremely disappointed by INESSS’ position on only life-saving treatment
Governments agree to fund life-saving treatment for rare, fatal blood disease
June 3, 2011
Quebec PNH Patient Association extremely disappointed by INESSS’ position on only life-saving treatment
April 8, 2011
Study to be published in Blood journal reinforces efficacy of only available PNH treatment
Study to be published in Blood journal reinforces efficacy of only available PNH treatment
March 7, 2011
Lives still at risk as Ontario government delays access to treatment for rare blood disorder
Lives still at risk as Ontario government delays access to treatment for rare blood disorder
February 28, 2011
Patients with rare blood disease turn to social media to add many voices to their few
Patients with rare blood disease turn to social media to add many voices to their few
December 9, 2010
Government grants PNH community gift of life
Government grants PNH community gift of life
Fact Sheet
Open Letters
April 20, 2011
Letter to Ontario Minister of Health, Deb Matthews
Letter to Ontario Minister of Health, Deb Matthews
December 8, 2010
Open Letter from Ontario PNH Experts
Open Letter from Ontario PNH Experts
