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Click to see the latest online media coverage on PNH from Maclean’s, the Mount Forest Confederate, the North Shore News, the Telegraph-Journal and the Edmonton Journal.

Thestar.com: “Dying patients ask: Where are the $1 billion in drug savings?” – November 19, 2010
Healthzone (The Toronto Star): “Dying patients ask: Where are the $1 billion in drug savings?” – November 19, 2010
Singtao: November 20, 2010
CTV Southwestern Ontario: “Wellington County man will die without help from gov’t, says family” – November 21, 2010
Thestar.com: “8 Ontario patients in need of $500,000 a year drug therapy” – November 21, 2010
Digital Journal: “Life, death hangs in balance for Ontarians with blood disease” – November 22, 2010
A-Channel News London: “Patient Says Province Won’t Cover Costs of Medicine”
Toronto Star: “Patients with rare disorder take fight to Queen’s Park” – November 22, 2010
Parent Central (Toronto Star): “Patients with rare disorder take fight to Queen’s Park” – November 22, 2010
Georgetown, ON: “Life-or-death situation prompts urgent questions”
Digital Journal: “PNH patient Barry Katsof discusses the need for drug Soliris” – November 23, 2010
Toronto Star: “Dying man gets $500,000 life-saving drug” – November 23, 2010
Moneyville (Toronto Star): “Dying man gets $500,000 life-saving drug” – November 23, 2010
570 News: “Area man denied life-saving drug” – November 24, 2010
French Tribune: “26-Year Old Suffering from PNH Receives Miracle Drug for a New Lease of Life” – November 24, 2010
AM 980: “Dying Man Gets Life Saving Drug From LHSC” – November 24, 2010
FM 96: “Dying Man Gets Life Saving Drug From LHSC” – November 24, 2010
1049 The Beach: “Family feels betrayed by government” – November 25, 2010
Bayshore Broadcasting: “Family feels betrayed by government” – November 25, 2010
Moneyville (Toronto Star): “Differing access to life-saving drugs has to stop: McGuinty” – November 25, 2010
Top News: “Ontario Premier Voices Commitment to Fixing Inequities in Drug Availability” – November 25, 2010
Toronto Star: “Differing access to life-saving drugs has to stop: McGuinty” – November 25, 2010
A-Channel News London: “Hospital Will Provide Costly Medicine for Cancer Patient”
Globe and Mail: “Is the high price of drugs for rare diseases justified?” – November 25, 2010
Wellington Advertiser: “Mount Forest man finally gets needed drug (for now) after political uproar”
Top News: “The Drug that Costs a Fortune” – November 26, 2010
Wellington Advertiser: “Province dithers as expensive drug improves Mount Forest man’s health”
Wellington Advertiser: “Backroom executioners”
CTV Southwestern Ontario: ”Time running out for Maciesza’s treatment” – December 3, 2010
Canadian Health Reference Guide: “New study results reinforce efficacy of only available treatment for PNH patients” – December 8, 2010
Niagara Falls Review: “I was living like I was dying” – December 10, 2010
North Bay Nugget: “Woman champions funding for rare disorder” – December 11, 2010
Cnews.Canoe.ca: “Woman with rare disease faces $500K in drug costs” – December 22, 2010
Wellington Advertiser: “Medication working as family kept waiting by provincial inaction says Arnott”
The Toronto Star: “Dying man’s access to life-saving drug soon ends” – December 25, 2010
Health Zone (Toronto Star): “Dying man’s access to life-saving drug soon ends” – December 25, 2010
Cornwall Free News: “How much is a life worth? Are High Drug Costs Justifiable?” – January 3, 2011
Healthzone.ca (Toronto Star): “Ontario expands coverage for compassionate drug access” – January 21, 2011
Toronto Star: “Find a home for pricey ‘orphan drugs’” – January 27, 2011
Ted Arnott: “Government of Ontario finally improves access to life-saving medications” – January 28, 2011
Wellington Advertiser: “A group of bandits”
Wellington Advertiser: “Government to provide six months worth of life saving treatments”
Guelph Mercury: “Maciesza taps into social media advocacy campaign launched over care for rare illness” – March 4, 2011
Digital Journal: “Lives still at risk as Ontario delays access to treatment for rare blood disorder” – March 7, 2011
CTV.ca: “Expensive medication” – March 7, 2011
News.Singtao.ca: March 8, 2011
Dushi Toronto: March 8, 2011
Hospital News: “Patients with rare blood disease turn to social media to add many voices to their few” – March 2011
The Epoch Times: “Patients Seek Funding for Life-Threatening Blood Disease” – March 10, 2011
Welland Tribune: “Falls woman urges province to cover treatment” – March 14, 2011
Niagara Falls Review: “Falls woman urges province to cover treatment” – March 14, 2011
Wellington Advertiser: “Maciesza joins demonstration, lobbies for life saving drug”
Hamilton Spectator: “Lifeblood found in costly cure” – March 24, 2011
CHCH Hamilton: “Blood disorder binds two strangers” – April 7, 2011
Delta Optimist: “Drug cost to treat North Van man’s deadly blood disorder a likely death sentence” – April 9, 2011
Burnaby Now: “Drug cost to treat North Van man’s deadly blood disorder a likely death sentence” – April 9, 2011
Richmond News: “Drug cost to treat North Van man’s deadly blood disorder a likely death sentence” – April 9, 2011
Maple Ridge Times: “Drug cost to treat North Van man’s deadly blood disorder a likely death sentence” – April 9, 2011
CBC Ottawa: “North Vancouver man denied life-saving drug” – April 10, 2011
CBC British Columbia: “North Vancouver man denied life-saving drug” – April 10, 2011
Canadian Health Reference Guide: “Study to be published in Blood Journal reinforces efficacy of only available PNH treatment” – April 11, 2011
North Shore News: “Drug cost a likely death sentence” – April 13, 2011
The Vancouver Province: “Drug cost to treat North Van man’s deadly blood disorder a likely death sentence” – April 13, 2011
Canada.com: “You Said It” – April 13, 2011
Abbotsford Times: “Drug cost a likely death sentence” – April 13, 2011
Chilliwack Times: “Drug cost a likely death sentence” – April 13, 2011
The Surrey Now: “Drug cost a likely death sentence” – April 13, 2011
Langley Advance: “Drug cost a likely death sentence” – April 13, 2011
Edmonton Examiner: “Local man battling rare disease fights for public access to live saving treatment” – April 13, 2011
CKNW AM 980: “Philip talks about Garrett Shakespeare’s health crisis” – April 13, 2011
Calgary Sun: “Life-saving drug’s cost astronomical” – April 16, 2011
Toronto Sun: “Man fights to make life-saving drug more accessible” – April 16, 2011
Edmonton Sun: “Man suffering rare disease wants government to cover treatment costs” – April 16, 2011
Kingston Whig-Standard: “Man fights to make life-saving drug more accessible” – April 16, 2011
Canoe.ca: “Man fights to make life-saving drug more accessible” – April 16, 2011
Vancouver 24 Hours: “Man fights to make life-saving drug more accessible” – April 16, 2011
Winnipeg Sun: “Man fights to make life-saving drug more accessible” – April 16, 2011
London Free Press: “Man fights to make life-saving drug more accessible” – April 16, 2011
Ottawa Sun: “Man fights to make life-saving drug more accessible” – April 16, 2011
CBC.ca – Radio Active: “Seeking Funding for PNH” – April 18, 2011
CBC.ca: “Blood disorder patient pushes for drug funding” – April 25, 2011
High River Times: “Patient lobbying government to approve expensive treatment” – April 26, 2011
CKNW AM 980: “Philip Till talks about the lack of funding for Garrett Shakespeare’s medication and the funding for Insite” – May 10, 2011
CTV Calgary: “Cured by a costly drug” – June 1, 2011
Yahoo Canada Finance: “Quebec PNH Patient Association extremely disappointed by INESSS’ position on only life-saving treatment” – June 3, 2011
Maclean’s: ”The case for a national drug plan” – June 8, 2011
Healthzone.ca: “Premiers reach deal on bulk-buying of expensive drug” – July 22, 2011
Toronto Star: “Premiers reach deal on bulk-buying of expensive drug” – July 22, 2011
Canada.com: “Support announced for rare blood disease sufferers” – July 23, 2011
Vancouver Sun: “Support announced for rare blood disease sufferers” – July 23, 2011
Ottawa Citizen: “Support announced for rare blood disease sufferers” – July 23, 2011
Calgary Herald: “Support announced for rare blood disease sufferers” – July 23, 2011
Edmonton Journal: “Support announced for rare blood disease sufferers” – July 23, 2011
Sing Tao News: July 23, 2011
Global BC: “Life saving medicine” – July 24, 2011
CTV Southwestern Ontario: “Mount Forest man wins funding battle for life-saving drug” – July 24, 2011
CTV Edmonton: “Mount Forest man wins funding battle for life-saving drug” – July 24, 2011
Guelph Mercury: “Guelph family celebrates news surrounding public coverage of costly drug regimen” – July 25, 2011
Waterloo Region Record: “Guelph family celebrates news surrounding public coverage of costly drug regimen” – July 25, 2011
Wellington Advertiser: “Provinces agree to fund expensive life saving drug; Maciesza pleased”
CKNW AM 980: “Good news for Garrett Shakespeare and PNH patients across Canada” – July 25, 2011
The Vancouver Province: “Most expensive drug in the world reverses death sentence for North Vancouver man” – July 25, 2011
The Vancouver Sun: “Premiers agree to fund ultra-expensive drug for rare condition” – July 25, 2011
The Ottawa Citizen: “Premiers agree to fund ultra-expensive drug for rare condition” – July 25, 2011
Daily Gleaner (Fredericton): Ultra-expensive treatment for rare condition gets funding” – July 26, 2011
Telegraph Journal: “Ultra-expensive treatment for rare condition gets funding” – July 26, 2011
The Edmonton Journal: “Drug-funding agreement gives rare disease patients new hope” – July 26, 2011
Nanaimo Daily News: ‘Expensive blood disorder drug will be funded” – July 26, 2011
Alberni Valley Times: “Premiers agree to fund ultra-expensive drug” – July 27, 2011
CKNW AM 980: “Premiers agree to fund Shakespeare’s “Miracle Cure”” – July 27, 2011
Niagara Falls Review: “Falls native welcomes funding for treatment of rare blood disease” – July 31, 2011
Welland Tribune: “Funding OK’d for life-saving treatments” – July 31, 2011
St. Catharine’s Standard: “Niagara native welcomes funding for treatment of rare blood disease” – July 31, 2011
North Shore News: “Premiers agree to fund expensive life-saving drug” – August 2, 2011
Hamilton Spectator: “Government funds life-saving treatment for rare blood disorder” – August 3, 2011
Mount Forest Confederate: “Life-saving drug to be covered” – August 4, 2011
Maclean’s: “Premiers’ ‘life-saving’ pact” – August 9, 2011
High River Times: “Government drug deal will save lives says High River woman” – August 12, 2011