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December 21, 2012

As the issue of a catastrophic drug program heats up in New Brunswick, Mark Brennan, a PNH patient in Saint John, has been pushing hard for access to Soliris. Mark’s story has received some media attention in the province, as a result of an open letter he wrote to the government, his employer and insurance company.

Joined by Barry Katsof, Mark went to the legislature on December 18 to pressure the government to reveal the details of their recommendations for a catastrophic drug plan in the province, and ensure that Soliris will be accessible to those PNH patients who require it when the program is rolled out.

The report was tabled that day in the legislature, and government has said that the provincial catastrophic drug program will be finalized and put in place in 2013.  While no firm commitment was made for Soliris, Barry and Mark know their presence was felt and messages were received.

Mark shares his story in the articles below.

Print
Telegraph Journal – Patient awaits details of prescription drug plan – December 14, 2012
Daily Gleaner – Patient awaits details of prescription drug plan – December 14, 2012
Times & Transcript – Patient awaits details of prescription drug plan – December 14, 2012
Telegraph Journal – Crucial drug is hard to access – December 17, 2012
Telegraph Journal – Catastrophic drug plan closerDecember 19, 2012

Radio
News 91.9 FM “Maclean in the Morning” – Barry Katsof interviewed by Tyler Maclean - Monday, December 17
News 95.7 FM “Maritime Morning with Jordi Morgan” – December 19, 2012
CKNI-91.1 FM The Morning News – December, 19 2012
CBC Radio One “Regional News” – December 19, 2012

Television
CBC Halifax – December 14, 2012
CTV Halifax – Friday, December 19
Global Maritimes – December 19, 2012

Online
CTV News Atlantic
CBC.ca
Global News
Country 94 News