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July 22, 2011

On Friday, July 22, premiers attending the Council of the Federation annual meeting in Vancouver reaffirmed their commitment to working together to improve patient access to life-saving drugs. As a result of this pan-Canadian cooperation, all of the provinces (except for Quebec) reached a landmark agreement to provide public access to the life-saving treatment, Soliris, for the ultra-rare blood disease called PNH. With this agreement, Canada joins the vast majority of jurisdictions in the developed world that ensure access to Soliris for their citizens through government funding. The Canadian Association of PNH Patients commendeds the provinces’ commitment to providing equitable access to the care that PNH patients require and deserve.