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June 3, 2011

Following the recent recommendation made by INESSS (Institut national d’excellence en santé et services sociaux) to not include Soliris on Quebec’s public drug insurance plan drugs list, the Quebec Association of PNH Patients needs the assistance and support its members, partners and collaborators more than ever. In the wake of this negative funding recommendation, the PNH community will continue to strive towards obtaining universal access to the only effective treatment for patients with PNH in Quebec and Canada.