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Fight for Our Lives!

By now, you will have heard about changes being made to Canada’s Patented Medicine Prices Review Board (PMPRB) and how those changes will impact rare disease patients. New price restrictions will block many rare disease treatments from coming to Canada; whereas governments in other countries have found better ways to lower drug budgets without harming patients. The Canadian Association of PNH Patients joins the rare disease community across Canada in the Fight for Our Lives – urging the federal government to stop the changes to PMPRB and start protecting the lives of patients!

Make your voice heard!

There is a Twitter campaign happening now to get the attention of key decision makers around this important issue. Send a tweet with the #FIGHTforourLIVES hashtag or use the tweet we’ve provided below.

For more information on the Twitter campaign visit the Fight for Our Lives website, click here

Click on any of the Tweets below to contact federal decision makers

Prime Minister @JustinTrudeau and Health Minister @PattyHajdu please stop changes to PMPRB and start protecting our lives. Other countries found better ways to lower drug budgets without harming patients. Help us #FIGHTforourLIVES @PNHCanada @raredisorders @fight_4_lives

.@JustinTrudeau et min. de la Santé @PattyHajdu mettez fin aux changements du CEPMB et protégez nos vies. D’autres pays ont trouvé des moyens de réduire les budgets des médicaments sans nuire aux patients. Aidez-nous à #FIGHTforourLIVES @PNHCanada @raredisorders @fight_4_lives

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