The Canadian PNH Support Group is a closed group that is managed by the Canadian Association of PNH Patients, which contains information for PNH patients and caregivers only, and exists to facilitate dialogue between members of the Canadian PNH community. Please feel free to share your thoughts, experiences and stories, as well as engage in discussion with other members.
If you are interested in joining, please submit a request to become a member of this group. To ensure that this is a safe, private space for sharing, we require that you answer a few questions that will be sent to you via a private Facebook message. Please note that only Canadian PNH patients and their caregivers will be accepted. Anyone who has been blocked from any other closed Facebook groups will not be accepted.
We look forward to welcoming you to our group!