Real stories from our community
Living with PNH
No two experiences are the same, but together, our stories remind us we’re never alone. These three patients have each shared their story to remind us that no one faces this journey alone.
Read Ellie B's story
PNH entered my life as an unwelcome diagnosis, but it taught me something profound: strength wears many uniforms. The one on my back as an officer, the invisible one I wear as a mother, and the resilient one I carry as a patient—all are possible to wear simultaneously.
Read Olivia O's story
Every chapter of my PNH story has been uniquely challenging. Through the years, I've learned to adjust, listen to my body, and also appreciate where I am.
Read Kim M's story
Life doesn't end with PNH. With the proper treatment and mindset, it can still be exactly what you want it to be.
Related topics
Caregiver support
Discover guidance for caregivers of people with PNH, including practical help, emotional support, and self-care advice.
Better Living with PNH
Discover a holistic approach to improving your wellbeing.
Find a PNH Specialist near you
Search by province or territory to locate clinics and specialists experienced in PNH.